
Hello everyone,
Kathy nudged me into posting..(thank you for the message!)
I have been neglectful. I promised to post after my last doctor's appointment and didn't do it. Well, to be honest, I didn't have all that much fun at the doctor's and wasn't really feeling in a rush to share it. I am a bit in a holding pattern at this moment, going to work and temporarily putting these issues aside, although this mini-vacation from it all can't last too long. I need the break, though. I am finally feeling better and more like my old self (more than 2 months out from my last chemo). I am going to work and even will be away on a business trip to Canada next week.
I also don't want to write the full story here, right now. Everyone is thinking about Thanksgiving and good family time and I want to, too. Nothing is happening in the next couple of weeks, so the details will hold.
The short version is: the PET/CT scan still shows the 2 masses in my abdomen as lighting up, which means they are likely still active disease. There's a possibility that they are inflamed tissue.
Either way, general consensus is that the disease is not completely gone and that it will come back. (One doctor said "not a question of if, but when").
Options include radiation therapy (although not likely curative), a bone marrow transplant, or other clinical trial investigations if I can find something that suits my case.
At the moment I have an appointment to see the radiation oncologist on Dec 6th, and a followup PET/CT on December 20th. I see my regular oncologist again in the beginning of January. Unless I decide to take some other action.
I have a few links and other info which I will post somewhere in the next couple of weeks for more information.
For now - enjoy your Thanksgiving! I am thankful for all the love and support I have received over this trying year. I hope you have a wonderful time with your loved ones this season.

For Staci

For Kelly

Gobble Gobble
4 comments:
Hi Sue.
Thank you for posting the information. Please let me know if there is anything I can do for you. If you need to talk (or scream), please give me a call. I am always just a phone call away!
I hope you and Johnny have a nice Thanksgiving. Tell your mom and Mike Happy Thanksgiving too!
Love,
Sheli
Hi Sue,
If there is anything you need, please let me know. I'll see you tomorrow at Dana and Thom's for Thanksgiving after all.
Take care.
Love,
Mona
Hey Sue,
Thanks so much for the update, I always check in on you when I can and have you on my mind. I'll be praying extra for you. Enjoy the holiday season and don't worry about things. Big hugs from me to you,
Kathy
Thinking of you, Sue, and hoping you get well. Wishing you a happy holiday.....
Julie Benson
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